Links to help patients find more information about clinical trials, and connect with relevant patient organisations.

Organization Description
ISSCR: a closer look at stem cell treatments Helps patients evaluate stem cell treatments
ClinicalTrials.gov

clinical trials database. 

IMPORTANT: Information on ClinicalTrials.gov is provided by the sponsor or principal investigator of the clinical study, and posting to this site does not necessarily reflect endorsement by NIH. ClinicalTrials.gov does not independently verify the scientific validity or relevance of the submitted information beyond a limited quality control review for apparent errors, deficiencies, or inconsistencies. Talk with a trusted healthcare professional before choosing to participate in a clinical study.

EU Clinical Trials Register Search for clinical trials in the EU
NHS Clinical Trials Database includes searchable database, articles and information
Orphanet | patient organisations Portal for rare diseases and orphan drugs: patient organisations listing
Orphanet | patient registries Search for patient registries and biobanks relevant to rare diseases at the portal for rare diseases and orphan drugs
Patients Like Me patient social network: includes clinical trials matching tool
TREAT-NMD patient registries List of patient registries for neuromuscular conditions.
UK Clinical Trials Gateway Easy to understand information about clinical research trials running in the UK